Day 23

Today couldn't have gone better! We made a lot of ground today. Like I said before, Kylee had a great night. She woke up and went off to school on time with her car pool ride. It was her first day of AIMS testing so I was so thankful she had a good night's rest. I didn't get a call from the school nurse all day! I had to go take her out of school at 1pm because she had a doctor appointment with the neurologist at 1:30 today. When I got to the school, the nurse told me that Kylee came in the office for drops and ice because her stomach hurt a little. I'm so proud of her for sticking it out and going back to class. That is huge for her!

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While at the neurologist, we learned some interesting news. Back on April 6th, when Kylee had her MRI, they drew blood and ran some tests as well. The results came in and we learned that Kylee tested positive for H. Pylori and Epstein-Barr. These two combined are possibly what triggered the Guillain-Barre. Just crazy that all of this is going on in Kylee's tiny little 7 year old body! H. Pylori is an infection in her stomach....which has been causing her diaherra and vomiting. Considering she has had diaherra off and on for the past year, it makes me wonder how long her body has been infected with this. Epstein-Barr is a form of Mono. After doing research on it, it's very common and 95% of people have it and don't even know it. The symptoms are often non-existent or if there are symptoms, they come in the form of cold-like symptoms or flu-like sypmtoms. So often a cold will be treated but it's actually Epstein-Barr. Anyhow, these two combined seemed to have triggered some kind of an attack on her nervous system, which caused the Guillain-Barre. This is just an assumption, not fact...but it's just nice to finally have some answers as to why this all could have started.

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Kylee will start her neuro-physical therapy tomorrow. She is actually really excited about that. Her neurologist said it's time to start getting her back in dance and softball as well. So she went to dance today and will go to softball practice tomorrow! We also have to go back to the pediatrician to have them send us in a direction to start treating the H. Pylori...probably with another antibiodic or what not. I hate shoving all this medicine down her stomach, but if it works and gets her healthy again, I guess it's what we have to do.

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Kylee has been great all day. She had one little spat of a painful headache around 3pm that lasted 15 minutes or so, but that was it. It's 7:45pm right now and she is still going strong! I predict another great night and good day tomorrow. I feel great and things seem to be finally heading in the right direction!